More Appointments

We went to the neurosurgeon yesterday for a follow-up. Her surgery site looks fine, but her head circumference was up 2 1/2cm, so we were sent over for an ultrasound. Her ventricles are dilated a bit more. 7mm on one side, and 10 on the other. Still not hydrocephalus, but they want to watch it. So, we go back in 2 weeks for another ultrasound.

We also have an appt next Friday with a urologist to fully evaluate her urinary function.

Everything is going well at home. She sleeps most of the night, just wakes up to eat. (hope that continues...) She prefers to be held during the day, but I can't blame her. I like to be held too. :)

I still need to take her in for a urine check and schedule her 4 week check-up with our local doctor. I think we will have weekly visits of some kind for a while. Very tiring, but worth it.

I had a request to get more pictures up of the girls, so I'll try and get some of Abigail up. I put one up of Hannah, but need a current one of miss Abby.

I continue to covet your prayers. I strive to be anxious about nothing, but it takes some effort....

Today's Note...

We went in for a weight check today, and Madison is 7lbs 11oz. Up three ounces from her birth weight. Kirsten was there when she was being weighed on her birthday, and confirmed that she was 7lbs 8oz at birth.

She's nursing better each day, and is just a sweet little thing. Hannah loves to hold her (for about 15 seconds) and Abby is ignoring her for the most part. She's decided she likes me again though, which is very nice. :) Seth and Ethan are always wanting to hold the baby, she's quite the commodity. They always scrub up really good first, just like we did in the NICU. It's so cute.

Life is good here, and I have had constant help from my mom, sister, and daughters. Not to mention my dear hubby, who has been cooking up a storm, and feeding me quite well.

Well, off to bed once again....

Home at Last

We made it home at last at about midnight. It took all afternoon/evening to get all the paper work done, get the run-down on her care, and gather her things. Finally loaded up into Kirsten's car and headed home. Madison and I slept the whole way.

Tim had gone home early in the day with the boys and my sister. (Karen) She came up and stayed a the last couple of days with me there. I have been so blessed by the care and attention of my family. Thank you! It was good to get home and sleep in my own bed, with my new baby next to me. Didn't realize how much I was missing that part.

Abigail and Hannah met her this morning. Abigail is not too sure what to think. She spent some time crying and avoiding me, but cuddled off and on too. Hannah is just a sweet little mama with her. Kissing and wanting to hold her. (a bit on the rough side though)

Madison is nursing better, still not long sessions, but latching a bit better. Her little bottom is so sore from having constant BMs and maybe from the antibiotic too. She needs a low prophylactic dose everyday because of her kidney reflux. I hope that gets better. I've never seen diaper rash like this.

Well, she is getting hungry, but I wanted to post a quick note. Thank you for prayers. :)

Going Home!!!

Madison is getting discharged today! What a surprise! :)

So, we are packing up and going to get her. Still need to check out of Ronald McDonald house. This has been quite a week. Feels like it's been a month. I'll update again as soon as I can.

Well.....

Madison is growing well. She weighed in yesterday at 7lb 11oz. She's eating plenty and is allowed to eat on demand, which means I can try and nurse whenever she's seems hungry. (yay!) It's been a bit of a struggle to get her to latch the last couple of days, but she did nurse for 15-20 minutes this afternoon. (phew!) I was getting a bit stressed about that.

So, she had a few tests yesterday. Kidney ultrasound, and VCUG (voiding cystourethrogram). She showed some reflux on one side. She seems to be emptying the bladder just fine, but we haven't gotten a final report and recommendation from the urologist yet. She also had an ultrasound of the brain again today because her head circumference is up 1cm. A few more things to pray about.

I'm thankful she is so healthy, and doing very well. A bit scared and anxious about the findings today and yesterday. I did get some great pictures I will try and get posted here. Still working on that.

Seth and Ethan have been here the past few days, and they are loving her so much! She is really a beautiful and sweet little thing. She was awake and looking around quite a bit today as well. I can't wait to bring her home so I can be there for each moment.

Thank you all for your prayers!